Scleroderma support group meetings sponsored by the Tri-State Chapter of the Scleroderma Foundation are held online. For more information, please visit sclerodermatristate.org
Contact us at NYNY@sclerodermatristate.org
Monthly myositis support group meetings sponsored by the Department of Social Work Programs and the division of Rheumatology at Hospital for Special surgery. The group meets on the 2nd Wednesday of every month at 6:00pm. Please contact Suzan Fishbein (fischbeins@hss.edu) before attending your first meeting.
Support Group Leaders:
Suzan Fischbein, LCSW - 212.774.7623
fischbeins@hss.edu
Social Workers are available to address your and your family's individual needs around a new diagnosis, or any related emotional, social, or practical concerns that can arise. We offer supportive counseling and referrals to community resources through Mary Carey, Senior Social Work Manager, Rheumatology, 212.774.2737 or careyma@hss.edu. For further information, please visit the Department of Social Work Programs website.
Occupational therapy provides individualized treatment programs designed to improve dexterity, coordination, mobility and strength of the upper extremities. This specialty focuses on maximizing independence in daily activities to facilitate independence and ensure optimal level of function at home and on the job. The occupational therapists at the HSS Hand Therapy Center provide quality care for patients.
Our occupational therapists are experienced in managing patients with scleroderma, vasculitis, and myositis and are trained to evaluate, assess musculoskeletal function and functional performance. If your hands make it difficult to perform everyday simple tasks such as:
An occupational therapist can recommend new ways of doing things or devices to make tasks easier, and help make you more independent. Occupational therapists can also prescribe specific exercises to help stretch the tissue, and maintain motion.
For more information or to set up an appointment, please contact 212.606.1660
Carol Streep, MS, RD, CDN, LDN
Carol is a Clinical Nutritionist with the Department of Food & Nutrition Services at HSS. She received her Master of Science in Clinical Nutrition from New York University, gaining extensive experience in medical nutrition therapy. Carol works with a broad spectrum of conditions – focusing on a wide array of musculoskeletal conditions and rheumatic diseases, as well as weight management and bone health. Carol believes in a personalized approach to counseling, listening to her patient’s unique needs to create a well-balanced, sustainable nutrition plan.
Members of the HSS Scleroderma, Vasculitis & Myositis Center participate in the "Stepping Out to Cure Scleroderma" events to help raise funds and spread scleroderma awareness. We encourage you to join us in the efforts by going to www.SteppingOutWalk.org and registering yourself or a team. View the video
By walking you'll support the Scleroderma Foundation and the hundreds of thousands of adults and children who cope with this disease every day.
We host a number of educational programs to enhance the public’s awareness of scleroderma, vasculitis and related conditions. View footage of past educational forums hosted by Scleroderma Foundation Tri-State, Inc.
Scleroderma, Vasculitis, and Myositis are serious diseases which can be life threatening and life altering. The impaired quality of life imposed by these diseases as well as the uncertainties they pose for future good health are a hardship for both the patient and their family. Seeking emotional/spiritual support can help with the management of your care.
As members of the health care team, the professional chaplains in the Hospital's Department of Spiritual Care can help improve patient and family outcomes by identifying and addressing important beliefs and values; meeting spiritual needs; and reducing spiritual distress and anxiety for all persons regardless of faith, belief or culture.
Contact the Department of Spiritual Care:
535 East 70th Street
New York, NY 10021
9W Room 105
Tel: 212.606.1757