New York—February 19, 2014
ScleroMen Social Media Support Group
Because scleroderma manifests in a unique way in men, their issues and concerns are unique as well.
The ScleroMen social media support group provides a means for men with scleroderma to connect with one another. Members share stories, seek advice and ask questions – in a caring and supportive environment. Join ScleroMen and become part of an understanding and educated group of men finding ways to deal with scleroderma and its complications. This is a closed Facebook group. Only men with scleroderma may join by request.
Co-Leader: Andrew Botieri
ScleroMen@Sclerodermatristate.org
What Is Scleroderma?
Literally, scleroderma means “hard skin”; however the disease is better defined as being characterized by a hardening of the body’s connective tissue. Approximately 300,000 individuals in the US are affected by the disease. An estimated 29,000 of them live in the Tri-State Chapter’s New York, New Jersey and Connecticut service area.
About the Scleroderma Foundation / Tri-State Chapter
The Scleroderma Foundation/Tri-State Inc., Chapter is a 501(c)(3) non-profit organization serving New York, northern New Jersey and Connecticut. The chapter has a three-fold mission which is to promote the welfare of individuals and families affected by scleroderma, increase public awareness and support scleroderma research.
About HSS | Hospital for Special Surgery
HSS is the world’s leading academic medical center focused on musculoskeletal health. At its core is Hospital for Special Surgery, nationally ranked No. 1 in orthopedics for 14 years in a row and No. 2 in rheumatology by U.S.News & World Report (2023-2024). Founded in 1863, the Hospital has one of the lowest infection rates in the country and was the first in New York State to receive Magnet Recognition for Excellence in Nursing Service from the American Nurses Credentialing Center four consecutive times. The global standard total knee replacement was developed at HSS in 1969. An affiliate of Weill Cornell Medical College, HSS has a main campus in New York City and facilities in New Jersey, Connecticut and in the Long Island and Westchester County regions of New York State. In addition, HSS opened a new facility in Florida in early 2020. In 2019, HSS provided care to 151,000 patients and performed more than 35,000 surgical procedures, and people from all 50 U.S. states and 89 countries travelled to receive care at HSS. In addition to patient care, HSS leads the field in research, innovation and education. The HSS Research Institute comprises 20 translational research laboratories, 33 scientists, 10 clinician-scientists, 55 clinical investigators and 245 scientific support staff that drive the HSS research enterprise in the musculoskeletal “ecosystem,” neurology, pain management and rheumatic diseases. The HSS Innovation Institute was formed in 2016 to realize the potential of new drugs, therapeutics and devices. The HSS Education Institute is the world’s leading provider of education on musculoskeletal health, with its online learning platform offering more than 300 courses to more than 30,000 medical professional members worldwide. Through HSS Global Ventures, the institution is collaborating with medical centers and other organizations to advance the quality and value of musculoskeletal care and to make world-class HSS care more widely accessible nationally and internationally.
212.606.1197
mediarelations@hss.edu